Swensons — alex kent

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This is the Swenson family on a typical night. James watches competitive poker while Jennifer prepares a vitamin B shot for her daughter, Ka’ Leigha. Their eldest daughter, Christiana, plays with the youngest daughter, Ama.

Ka’Leigha is six-years-old and has a severe form of epilepsy known as Lennox-Gastaut Syndrome (LGS). The condition causes severe seizures and global cognitive dysfunction that often includes physical disabilities. Ka’Leigha is non-verbal, non-ambula

Ka’Leigha’s hips were slowly becoming dislocated. The stiffness in her legs causes her to contort her body into a position that pushes her hip bones out of the socket when she sleeps. Ka’Leigha’s physicians recommended a mattress, called a Dreama

TennCare, Tennessee’s Medicaid Program, refused to pay for the equipment. The family filed four appeals before contacting the Legal Aid Society who was eventually able to help overturn the decision. But, by the time TennCare shipped the mattress, it

Despite her disability, Ka’Leigha goes on regular hikes with the family, takes special trips to sit on Santa’s lap before Christmas, and even participates in Daisy Scouts.

At the annual Girl Scout’s Christmas party, Ka’Leigha’s nurse, Lisa, comforts her as she cries out in physical discomfort. “She’s in Girl Scouts, does she understand what’s going on? Maybe, maybe not but to me I want her involved. I’m not going to

Although social interactions are difficult for Ka’Leigha, the eldest sister Christana is already familiar with many of the tasks related to her care and is eager to assist her mom with medications and feeding.

Due to COVID-19, the family has been conducting all medical appointments via tele-health. The whole family gathers in Ka’Leigha’s with their complex care specialist where the family tells their physician that they plan on delaying the surgery as lon

The family is doing everything in their power to delay the surgery so that she can continue doing the things that she loves and to spare her the pain. As of February 15, 2021, the family has not rescheduled the surgery, but it is likely just a matte

This is the Swenson family on a typical night. James watches competitive poker while Jennifer prepares a vitamin B shot for her daughter, Ka’ Leigha. Their eldest daughter, Christiana, plays with the youngest daughter, Ama.

Ka’Leigha is six-years-old and has a severe form of epilepsy known as Lennox-Gastaut Syndrome (LGS). The condition causes severe seizures and global cognitive dysfunction that often includes physical disabilities. Ka’Leigha is non-verbal, non-ambula

Ka’Leigha’s hips were slowly becoming dislocated. The stiffness in her legs causes her to contort her body into a position that pushes her hip bones out of the socket when she sleeps. Ka’Leigha’s physicians recommended a mattress, called a Dreama

TennCare, Tennessee’s Medicaid Program, refused to pay for the equipment. The family filed four appeals before contacting the Legal Aid Society who was eventually able to help overturn the decision. But, by the time TennCare shipped the mattress, it

Despite her disability, Ka’Leigha goes on regular hikes with the family, takes special trips to sit on Santa’s lap before Christmas, and even participates in Daisy Scouts.

At the annual Girl Scout’s Christmas party, Ka’Leigha’s nurse, Lisa, comforts her as she cries out in physical discomfort. “She’s in Girl Scouts, does she understand what’s going on? Maybe, maybe not but to me I want her involved. I’m not going to

Although social interactions are difficult for Ka’Leigha, the eldest sister Christana is already familiar with many of the tasks related to her care and is eager to assist her mom with medications and feeding.

Due to COVID-19, the family has been conducting all medical appointments via tele-health. The whole family gathers in Ka’Leigha’s with their complex care specialist where the family tells their physician that they plan on delaying the surgery as lon

The family is doing everything in their power to delay the surgery so that she can continue doing the things that she loves and to spare her the pain. As of February 15, 2021, the family has not rescheduled the surgery, but it is likely just a matte

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