In the Shadow of. a Diagnosis — alex kent

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Danielle Alaimo buries her head into the chest of her disabled son, Malcolm, as she tries to get him ready for the day in Rochester, NY on 12.11.22. Malcolm was born with a uniquely severe case of Congenital Cytomegalovirus (CMV) that has contribute

Malcolm lies in a hospital bed surrounded by nurses and his mom who are all trying to figure out why his oxygen levels were low and heart rate so high after his hip surgery in Rochester, NY on January 14, 2023.

Malcolm cries in pain and fear as his mother, Danielle, rolls him over to change his diaper in Rochester, New York on January 16, 2023.

An overflowing basket of Malcolm’s medications is seen in the Alaimo home in Rochester, NY on December 7, 2022.

Danielle feeds Malcolm his medication before bed in Rochester, NY on December 8, 2022.

Danielle comforts Malcolm who is upset and feeling unwell several days after his hip surgery in Rochester, NY on January 13, 2023.

Danielle becomes tired and emotional after several days of being in the hospital diligently watching the rollercoasters of Malcolm’s response to the surgery and post-op medications in Rochester, NY on January 15, 2023.

Malcolm holds John, his favorite hospital comfort toy, who has also been fitted with a hip abduction pillow, just like the one Malcolm is wearing post-hip surgery in Rochester, NY on January 13, 2023.

Danielle and Malcolm play with Snapchat filters in the backseat during an errand run in Rochester, NY on December 6, 2022.

Malcolm draws a smiley face on the steamed glass of the family shower in Rochester, NY on December 11, 2022. Helping Malcolm get cleaned is one of Boston’s responsibilities, and it is cherished bonding time for the siblings.

Malcolm sprints through the house, while his sister, Boston, hugs Danielle in Rochester, NY on December 6, 2022.

Danielle, illuminated by Christmas lights, lights a cigarette after putting the children to bed in Rochester, NY on December 4, 2022.

Danielle and Malcolm share a dance in the living room in Rochester, NY on December 10, 2022.

Three generations of the Alaimo family hold hands after dinner in Rochester, NY on December 8, 2022.

Danielle gets the kids out of bed after they all snuck into one bed in the middle of the night in December 12, 2022.

Danielle and Malcolm share a hug after an emotional moment between the two happened during a diaper change in Rochester, NY on December 11, 2022.

Danielle Alaimo buries her head into the chest of her disabled son, Malcolm, as she tries to get him ready for the day in Rochester, NY on 12.11.22. Malcolm was born with a uniquely severe case of Congenital Cytomegalovirus (CMV) that has contribute

Malcolm lies in a hospital bed surrounded by nurses and his mom who are all trying to figure out why his oxygen levels were low and heart rate so high after his hip surgery in Rochester, NY on January 14, 2023.

Malcolm cries in pain and fear as his mother, Danielle, rolls him over to change his diaper in Rochester, New York on January 16, 2023.

An overflowing basket of Malcolm’s medications is seen in the Alaimo home in Rochester, NY on December 7, 2022.

Danielle feeds Malcolm his medication before bed in Rochester, NY on December 8, 2022.

Danielle comforts Malcolm who is upset and feeling unwell several days after his hip surgery in Rochester, NY on January 13, 2023.

Danielle becomes tired and emotional after several days of being in the hospital diligently watching the rollercoasters of Malcolm’s response to the surgery and post-op medications in Rochester, NY on January 15, 2023.

Malcolm holds John, his favorite hospital comfort toy, who has also been fitted with a hip abduction pillow, just like the one Malcolm is wearing post-hip surgery in Rochester, NY on January 13, 2023.

Danielle and Malcolm play with Snapchat filters in the backseat during an errand run in Rochester, NY on December 6, 2022.

Malcolm draws a smiley face on the steamed glass of the family shower in Rochester, NY on December 11, 2022. Helping Malcolm get cleaned is one of Boston’s responsibilities, and it is cherished bonding time for the siblings.

Malcolm sprints through the house, while his sister, Boston, hugs Danielle in Rochester, NY on December 6, 2022.

Danielle, illuminated by Christmas lights, lights a cigarette after putting the children to bed in Rochester, NY on December 4, 2022.

Danielle and Malcolm share a dance in the living room in Rochester, NY on December 10, 2022.

Three generations of the Alaimo family hold hands after dinner in Rochester, NY on December 8, 2022.

Danielle gets the kids out of bed after they all snuck into one bed in the middle of the night in December 12, 2022.

Danielle and Malcolm share a hug after an emotional moment between the two happened during a diaper change in Rochester, NY on December 11, 2022.

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